Our Patient Advocacy Program
We’re training young adult cancer survivors to be patient advocates for oncofertility awareness.
Our patient advocates will share their stories at the Oncofertility Consortium Conference in October 2025 and highlight the importance and value of a patient-centric mindset through all facets of oncofertility– from oncofertility research, clinical practice, to patient options. The result will help more adolescent and young adult cancer survivors have hope of biological parenthood.
Meet Our Advocates

Aaron Albanez
Patient Advocate
Aaron is a testicular cancer survivor, patient advocate, and Diabetes Educator whose work is deeply informed by lived experience. Diagnosed with type 1 diabetes as a child and testicular cancer in his 20s, he brings empathy, candor, and a patient-centered perspective to every interaction. Aaron’s dual journey through chronic illness and cancer has shaped his understanding of resilience—not just medically, but emotionally and practically.
He is a passionate advocate for oncofertility, especially those navigating IVF. Through his work and personal advocacy, Aaron strives to elevate voices often overlooked in survivorship conversations, turning his own experiences into a source of support and empowerment for others.
Aaron resides in San Diego with his wife Oksanna. They’ve supported each other through her thyroid cancer diagnosis in 2015 and his testicular cancer diagnosis in 2017. They recently began their journey to grow their family through IVF—an opportunity made possible thanks to the generosity of Worth the Wait, whose financial support helped turn their dream into a reality.

Chantal Kabwasa-Henly
Patient Advocate
Chantal is a two-time cancer survivor and passionate patient advocate based in Frederick, Maryland. She works in the special education department of a public school district and brings a personal understanding of fertility challenges faced by cancer patients.
Her journey to parenthood began in early 2020, but a diagnosis of stage 4 endometriosis quickly shifted her path. During a procedure, her doctor discovered a lump and after further testing she was diagnosed with nodular lymphocyte-predominant Hodgkin’s lymphoma. Because she previously worked at a fertility clinic and helped oncofertility patients get urgent appointments, Chantal and her husband immediately pursued embryo preservation. Following chemotherapy and a failed IVF attempt, her plans were further disrupted by a diagnosis of stage 3 uterine cancer, leading to emergency surgery and a complete hysterectomy.
Despite these setbacks, Chantal transformed her personal challenges into purpose. She now advocates for greater awareness of fertility preservation and surrogacy for cancer patients, encouraging others to advocate for themselves.
She and her husband recently began their surrogacy journey and are working toward building their family while inspiring others to pursue parenthood on their own terms. They live with their dog, Juno, in their new home which they hope to someday fill with the laughter of children.

Shane Winnyk
Patient Advocate
When Shane was 15, he was diagnosed with Hodgkin’s disease, right around the time Lance Armstrong was turning survivorship from a stigma into a badge of honor. Though he considered it the most interesting thing about himself, his only mention of it over the two ensuing decades was as a source of inspiration for friends and loved ones newly touched by the disease. When he would reveal himself as a survivor, their inevitable surprise often yielded, “I would’ve never known.” Then he asked them to imagine the day when the same would be said of their loved one upon their loved ones’ cancer victory.
Upon his twentieth “Re-Birthday,” Shane joined a pediatric cancer foundation and fell in love with the people going through what he went through. He listened to their stories and told them. He celebrated them and mourned them. Nearly a decade later he’s lending his voice to ensuring that today’s survivors have the option of telling their stories to their own children.
Shane’s unique perspective is informed from diverse vocations that span human services, technology, education, non-profit consulting and grant writing. He empties his heart into his causes so that the people he encounters can fill up the lives of those they serve. As he has only recently considered starting his own family, it occurred that, due to his treatment from long ago, he first had to discover if that was even possible. He recently learned that, like everything, it is. And now his attention turns from knowing that it’s possible – to helping others make it more likely.

In Memorial: Kayla Bell
Patient Advocate
We honor the life of Kayla—an advocate, daughter, friend, and creative—who passed away on July 5, 2025, at age 30 from neuroendocrine tumors (NETs). Despite the many adversities she faced, Kayla’s kind-hearted spirit never wavered. She was recently recruited as a Worth the Wait patient advocate and was eager to share her fertility preservation journey to raise awareness about oncofertility. Her presence and passion will be deeply missed by the Worth the Wait community.
Upcoming Events

Oncofertility Consortium Conference
Join us for the Oncofertility Consortium Conference this October, where we will explore the intersection of cancer and fertility preservation.
October 13-15, 2025

Conference Writing Workshop
Everyone Has a Story: Writing Our Way Through Oncofertility
This 75-minute workshop will utilize therapeutic writing to encourage all conference attendees to explore their emotions around working in the oncofertility field as a clinician, researcher or patient advocate. Kristin Bartley Lenz, a writer and licensed clinical social worker, will guide participants through journaling and poetry prompts to process emotions, find meaning in experiences, and promote growth. An open discussion after each exercise will create a safe environment for optional sharing and reflecting to connect with others and feel less alone. This workshop is designed for physicians, patient advocates, researchers, nurses and helping professionals. Creative writing can heal, transform, and inspire. Please join us if you’re registered to attend the Oncofertility Consortium Conference.
Monday, October 13 from 5:00-6:15 pm
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